Covid Cut for a Cure
Dec
1
to Dec 31

Covid Cut for a Cure

I think we can all agree, its been a bit of a crazy year!

So we figured, let's keep the crazy going, but in a fun way that also helps us continue to pursue a life saving customized therapeutic for Fritz, and others living with Duchenne!

Bry has not had a haircut in the year 2020, and he's been waiting for this moment. In the early days of quarantine he decided he wanted to leave his 2021 haircut up to all of you!

$1 EQUALS 1 VOTE. The more you donate, the more votes you get!

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Duchenne Awareness Day 2020
Sep
7
12:00 AM00:00

Duchenne Awareness Day 2020

September 7, 2020 is Duchenne Awareness Day.

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To honor this day, and all those living with Duchenne, we would love for our community to spread our message of strength with a temporary tattoo. This tattoo is a representation of the 3 exons Fritz is missing, out of the 79 exons that exist in our body to create dystrophin; a protein needed for muscles to maintain their integrity! Any error within these 79 exons causes Duchenne, Fritz's mutation being a deletion of exons 57, 58, and 59. We have chosen to bring attention to Duchenne in this unique way, on this special day, and we hope you will join us!

Don’t forget to share a picture and tag us on Sept 7!

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STRENGTH IS MORE THAN MUSCLE, STRENGTH IS OUR COMMUNITY RAISING AWARENESS WITH EVERY INTENTION OF FINDING A CURE!

*Tattoo’s must be purchased no later than Sept 2 to ensure they arrive on time!


A quick Biology lesson

🧬DNA is found in every cell of our body and carries all of our genetic information 

👖A section of DNA is called a gene. Each gene is made up of smaller parts called introns and exons. 

🧩Individual exons link together to create instructions for making proteins. All the exons fit together like a puzzle. 

📖Ribosomes then read the step-by-step instructions so that the body can create the needed protein. 

💪Dystrophin is a protein found in muscle cells. It helps strengthen muscle fibers and protect them from injury as muscles contract and relax. 

💪👖The dystrophin gene (is the largest gene) contains 79 exons that are linked together to form the instructions for making dystrophin protein. 

❌🧩❌Duchenne is caused by mutations or errors to the dystrophin gene, within the exons. Most commonly, one or more exons are missing, and the remaining exons don’t fit together properly. Because of this error in the genetic instructions, cells cannot make dystrophin, a protein muscles need to work properly. 

Fritz has a deletion of Exons 5️⃣7️⃣•5️⃣8️⃣•5️⃣9️⃣ causing Duchenne to wreak havoc on his body. So in efforts to raise awareness, honor our fight, and remind ourselves that strength is more than muscle, we choose to put on our body’s what his body is missing.

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Feb
25
to Mar 11

Phoenix Suns Suite Raffle

WHAT YOU WIN

-Phoenix Suns Suite for you and 14 of your closest friends, along with Fritz and his family!

-Food and Drink included

-one-of-a-kind Fritz&Friends Suns themed T-shirt

WHO YOU HELP 

Duchenne Muscular Dystrophy is a genetic disorder found mostly in boys. Due to a mutation on the dystrophin gene, Duchenne leads to progressive weakening of the muscles. Those with Duchenne Muscular Dystrophy typically lose the ability to walk around the ages of 8-12, with the muscles in their upper extremities failing into their mid-teens, followed lastly by failure the most important muscle, the heart. Those with DMD typically do not survive their mid-twenties. There is no cure......yet.

100% of your raffle ticket purchase will go to fund life changing research in efforts to save the muscles and life of Fritz, and all those living with Duchenne.

HOW IT WORKS

-All entries will be put into a drawing via the name given on purchased entries. 

-All tickets must be purchased by March 10, 12:00am MST. 

-Entry MUST INCLUDE AN EMAIL for contacting purposes.

-Winner will be drawn, announced, and notified on March 11. 

-Winner must respond to winning notification by March 14.

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Apr
27
9:00 AM09:00

MDA MUSCLE WALK 2019

Join us SATURDAY, April 27 @ 9:30am at RIVERVIEW PARK, in Mesa for the 2018 MDA Muscle Walk. We will be walking as 'Team Fritz&Friends' and we encourage all participants to wear any Fritz&Friends gear to the event.

To join our team and/or make a donation click here. All donations for this event will be given to the Muscular Dystrophy Association. We are so grateful to partner with the MDA, and are grateful for all they do for Duchenne, and many other neuromuscular diseases!

 

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Mar
31
10:00 AM10:00

Cuts for a Cure

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Need a Haircut?

Want to celebrate Fritz’s 3rd Birthday?

Been looking for a way to bring strength to Duchenne?

Join us Sunday, March 31st, from 10a-5p, at Fritz’s Barbershop for a Birthday Celebration unlike any other!

Haircuts, Gourmet Hotdogs, Crafts, Coffee,

We will have a Barber and a Hair Stylist available for haircutting. Walk-ins are welcome, but if you would like to reserve a spot, simply click the link below. 100% of proceeds from haircuts will go to Duchenne research in efforts to find a cure!

Make your appointment & Donate

This year, we are honored to have Masterpiece Art Parties help us celebrate this special day! A variety of arts and crafts a will be available for kids to create and enjoy while they wait for haircuts, or while parents sit back and enjoy food and music.

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Come Hungry! We are very excited to partner with Burchie’s Gourmet Hotdogs. Burchie’s will be donating a portion of all hotdog sales to Fritz & Friends in efforts to help bring strength to Duchenne! Preview Burchie’s Menu

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The Organic Bean Cafe is located next door to Fritz’s Barbershop and will also be giving strength to Duchenne by giving a percentage of coffee sales to Fritz & Friends.

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'Fun With Fritz' at Kids That Rip!
Sep
23
12:00 PM12:00

'Fun With Fritz' at Kids That Rip!

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Please join KTR & Fritz&Friends for our first annual 'Fun with Fritz' FUNdraiser. We invite you to come play, be generous and be strong for a sweet little boy name Fritz.

$15 entry fee. 100% of proceeds will go to Fritz&Friends to help fund life changing research for boys living with Duchenne. 

Construction is complete and the new KTR-mesa is ready for you to come play! Fritz & his two brothers spend two mornings a week here and can’t get enough!

Enjoy a cool-airconditioned afternoon of raffles, games, contests and full access to the Sport Court (open play), Ninja Warrior Course, Parkour Zone, the Bag Jump Zone (freestyle jumping onto our air-pit),  Dodgeball, Sky bridge, Skatepark & Trampolines! 

Watch more on this upcoming event, here on Good Morning Arizona

All ages are welcome and a KTR liability waiver is required for each jumper (those under 18 must have their waiver signed by their parent or legal guardian). 

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Duchenne Awareness Day
Sep
7
6:00 AM06:00

Duchenne Awareness Day

Join us September 7, 2018 as we recognize Duchenne Awareness Day.

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How does one participate in Duchenne Awareness Day? IT'S SIMPLE! First, head to your local dollar store and purchase a RED BALLOON. Carry that balloon every where you go! When people ask, "Whats with the balloon?" You can respond, and in turn bring awareness to Duchenne, its that easy! 

*Don't forget to post a picture and tag us on social media with all the places you take your balloon and share our story that day, we love to see it!

Are you a teacher or parent to young kiddos?  Are you unsure about how to talk to them about Duchenne? Do you want to help them better understand why people might be carrying a Red Balloon on September 7th? Download and follow this FREE lesson plan to help your kids gather a better understanding of Duchenne Muscular Dystrophy, and teach them about true strength! Click the link below!

The Red Balloon: Duchenne Awareness Lesson &Activity

 

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Apr
21
9:00 AM09:00

MDA MUSCLE WALK

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Join us SATURDAY, April 21 @ 9:30am at RIVERVIEW PARK, in Mesa for the 2018 MDA Muscle Walk. We will be walking as 'Team Fritz&Friends' and we encourage all participants to wear any Fritz&Friends gear to the event. (*I haven't updated inventory on our website, but feel free to text or contact us via social media if you'd like to purchase a shirt before the walk because we do have lots of options!)

To join our team and/or make a donation click here. All donations for this event will be given to the Muscular Dystrophy Association. We are so grateful to partner with the MDA, and are grateful for all they do for Duchenne, and many other neuromuscular diseases!

 

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Barre3 in the Park
Mar
24
8:00 AM08:00

Barre3 in the Park

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Come celebrate Fritz's Second BIRTHDAY in a BIG WAY.

Join us on Saturday, March 24 at 9:00 for a Barre3 in the Park workout. This is a family friendly event; all ages and fitness levels are welcome. Come use your strength to give strength. Barre3 North Scottsdale will be hosting a class, followed by a raffle, and birthday celebration for Fritz.

With just a $20 donation you can participate in the Barre3 in the Park class. Click Here to donate and register. All proceeds will be given to Fritz&Friends to bring strength to Duchenne. 

 

Come join us for a special morning of celebration, fitness, and fun!

 

 

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Strength Is An Autumo Workout with Lindsey Valenzuela
Feb
10
9:00 AM09:00

Strength Is An Autumo Workout with Lindsey Valenzuela

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On February 9, 2017, Fritz was diagnosed with Duchenne Muscular Dystrophy. In recognition of his Diagnosis Day, we are honored to partner with Professional Crossfit Athlete  Lindsey Valenzuela  to bring strength to a population of boys that need it so desperately.  She has chosen to use her strength to give strength to Duchenne Muscular Dystrophy by hosting a workout at her gym, Autumo Crossfit in Moorpark, California in honor of Fritz. 

100% of proceeds from this event will fund research for Duchenne Muscular Dystrophy in efforts to find therapies to better the lives of those living with Duchenne.  

If you would like to help use your strength to give strength, please click below to reserve your spot!

Sign Up Here
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Dec
6
4:00 PM16:00

Chick-fil-A Birthday Launch

We are so excited to finally be an official 501c3. so we've partnered with one of our family's go-to-eat-out places to help us kick things off! Chick-way (as the boys like to call it) has agreed to give back 25% of the money raised as their way of bringing strength to Duchenne Muscular Dystrophy!

We also have another reason to celebrate! December 6th is my (Sarah's) birthday! And I'd love nothing more than to spend the evening with this village of people that have been so supportive in this new journey; while simultaneously raising money for a cause that is obviously very near and dear to my heart!

So come join us for a night of CELEBRATION!

*We will be selling some new Fritz&Friends 'Holiday Long Sleeves', that will only be available for purchase that evening! We will also have our "Original T" and the "Full Moon T" along with some new vinyl stickers available! 

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